Young Onset PD: Finding Support

Navigating a diagnosis of Young Onset Parkinson's Disease can feel isolating and overwhelming. Establishing a support network is an important step as you begin this journey. While family, friends, and your medical team are crucial, connecting with others in a similar position can be invaluable.

What is the value?

Connecting with others managing Young Onset Parkinson's Disease can help with:

Information exchange: Share resources, helpful contacts, and individual strategies to gain practical tips and advice from lived experience.

Feeling understood: A community with similar challenges and experiences can reduce feelings of isolation.

Emotional support: Many find it easier to be open with others in comparable situations.

Practical guidance: Receive advice on personal scenarios such as discussing your diagnosis with family and friends or requesting workplace accommodations.

Sustained motivation: Seeing others manage their symptoms effectively and maintain quality of life provides ongoing encouragement.

Where to start?

Parkinson's NSW: Offers in-person and online support groups across the state. https://www.parkinsonsnsw.org.au/support-groups

Young Onset Parkinson's Exchange (YOP-X): A website and mobile app designed specifically for those with young or early onset PD, featuring practical advice including NDIS application guidance. https://youngonsetparkinsons.org.au

Shake It Up: Provides real-life stories of people living with Young Onset PD, covering topics from workplace management to talking with children and family about your diagnosis. https://shakeitup.org.au/young-onset-parkinsons/

Stay tuned for our next blog topic: Young Onset PD and Relationships